I agree. One of the things this debate reflects is that societies really do need substantial trust: I want to trust that if my healthcare data is aggregated, then it will actually be used to serve society (and me).

In practice, data is often aggregated and then used to deprive some folks of healthcare, or sold to a pharma company below cost, with the pharma company then turning around and maximizing drug profits, where the drug was developed from the underpriced public data.