Thanks for this considered response. I find it difficult to disagree with anything you said in this particular comment :) however I do think each instance you mention in this message is quite different to the topic at hand, regarding the big tech data machine. Additionally, I think I would rather our UK level of privacy regarding healthcare data than the commercialised free for all in the US. One counterpoint could be that Palantir got a significant amount of UK NHS data.
Thanks for the consideration. Yeah US and UK are different in that respect. I got the impression that US ends with the worst deal on both ends: organisations that could help you are denied your data, while organisation most unscrupulous most bent on doing their worst with your data, get almost free access to it.
For UK - I'm reasonably sure some people will have died because of the difficulties sharing their data, that would not have died otherwise. "Otherwise" being - they could communicate with the NHS, share their data, similarly via email, WhatsApp etc, to how they communicate and share data in their private and professional lives.
People at personal level have a fairly reasonable stance, in how they behave, when it comes to sharing their data. They are surprisingly subtle in their cost-benefit analysis. It's only when they answer surveys, or talk in public, that they are less-than-entirely-truthful. We know this, b/c their revealed preferences are at odds with what they say they value, and how much they value.